A POEM FOR NALAH


A butterfly lights beside us like a sunbeam.

For a brief moment it's glory and beauty belong to our world.

But then it flies on again, and though we wish it could have stayed, we feel so lucky just to have seen it.

Tuesday, February 21, 2012

Nalah's Favorite Toy - the "Bug"


Once Nalah was able to sit more independently in her custom high chair (from the Glenrose Rehabilitation Hospital in Edmonton), she was able to fully enjoy her toys on the tray in front of her. Before getting this GRIP chair, Nalah depended on us to 'present' her with toys, hold them for her, or keep them  in reach. Having this supportive seating with the tray attached was a wonderful change for her. We could all hang out in the same room and she could learn new skills playing with stuff within her reach. Nalah had a special spot in the kitchen, and would play while I puttered, cooked, or cleaned up. With the proper supports, Nalah was able to learn to play more independently. Not that we ever left her alone, playing together was so much fun. But we tried to give her space to learn new things with or without our help. This Lamaze Bug was one of her favourites. One of mine too. You attached it to the tray with a suction cup, it had colours, sounds, shapes, lots of things to hang on to. Nalah learned to grab it, give it a good shake, and make it rattle. Again, a wonderful milestone for a trisomy child. I love this photograph as it shows Nalah exercising her new skill of reaching, grabbing, and you can tell on her face that she is having fun. 

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