A POEM FOR NALAH


A butterfly lights beside us like a sunbeam.

For a brief moment it's glory and beauty belong to our world.

But then it flies on again, and though we wish it could have stayed, we feel so lucky just to have seen it.

Tuesday, March 6, 2012

Nalah's Space at the Stollery Children's Hospital


Nalah's space at the Stollery was filled with crafts, art by her sister Karis, balloons, music and lots and lots of love. Nalah spent a fair bit of time in the Children's hospital, mostly because of airway issues. A trache may have benefitted her greatly, but it was not provided (long story). We tried to make her room as cheerful as possible. Her Dad would make huge banners every month for her 'monthly' birthday. Karis (her big sister) made crafts every single day for her little Sis. Mommy contributed some art as well (and endless balloons). Nalah adored the balloons at the foot of her bed. We played with them and she always loved the colours, movement, and designs. Needless to say I miss those days, and I miss my girl. We still keep balloons floating around the house, to remind us of her (not that we ever forget). I treasure all the artwork Karis made for Nalah. It has a special place in her keepsakes. A few staff members have said Nalah had the most cheerful room in the hospital. A bit cluttered, yes (drove our wonderful housekeeper nuts), but comfortable. This was Nalah's room in the cardiac unit. She spent most of her first year here, because after she coded at four months, it was a long slow climb back to 'relative' health and independence. This was our little bubble, and we treasure every moment we shared in this space.

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