A butterfly lights beside us like a sunbeam.

For a brief moment it's glory and beauty belong to our world.

But then it flies on again, and though we wish it could have stayed, we feel so lucky just to have seen it.

Saturday, April 17, 2010

Happy Birthday!

Nineteen months ago Nalah burst into this world after three feeble pushes by her terrified Mom. We were told at fourteen weeks gestation that Nalah would not live to her 18 week ultrasound, patted on the head (yes, really) told to go home and let nature take it's course. Nalah had other plans. Nalah has bravely faced the challenges of being genetically "unique". Never say never to Nalah! She has chased death from her door more times than I wish to count and faced tremendous hurdles as a developmentally delayed child. Hurdles which areman-made, unfortunately. It has become all too clear that many people do not understand or appreciate why anyone would choose to embace a child with developmental delay. It breaks my heart when others cannot see the beauty of my Nalah, devalue her or under estimate her. Nalah is here, loved, loving, living, growing, learning, playing, chattering, cooing, cuddling and simply being her delightful little self. I am extremely grateful to share this 19 month birhday with you dear Nalah! I love you beyond words my dear girl!