A tribute to our brave and precious little girl Nalah, who lived valiantly with Full Trisomy 18. Nalah is an inspiration, a blessing, and our greatest love.
A POEM FOR NALAH
A butterfly lights beside us like a sunbeam.
For a brief moment it's glory and beauty belong to our world.
But then it flies on again, and though we wish it could have stayed, we feel so lucky just to have seen it.
Sunday, February 19, 2012
Nice to Meet You....
Nalah getting acquainted with a new teddy, one of the Champion Bears honouring a child from the Stollery Children's Hospital in Edmonton. This bear was personally delivered by the little boy it was named after, during Nalah's PICU stay in December 2009. This is also one of our few shots of Nalah without clothing. I always frowned on posting photos of my girls with less than full covering and seldom took such photos. However, I am growing more fond to the photos which show Nalah's scars from her open heart surgery (October 2008) and her feeding button (g-Tube) as both were so necessary for her to thrive. It took Nalah a while to warm to new toys. This is her 'observation stage' with this bear. Once the toy passed this phase, she would be more friendly. As an aside, I regret not taking more photos of Nalah without coverings, as I want to remember absolutely everything about her.