A tribute to our brave and precious little girl Nalah, who lived valiantly with Full Trisomy 18. Nalah is an inspiration, a blessing, and our greatest love.
A POEM FOR NALAH
A butterfly lights beside us like a sunbeam.
For a brief moment it's glory and beauty belong to our world.
But then it flies on again, and though we wish it could have stayed, we feel so lucky just to have seen it.
Tuesday, April 3, 2012
Peek - a - Boo
Peek - a - Boo! Nalah's Daddy spent a fair bit of time attempting to teach Nalah this game. Looks like she caught on. This photo shows Nalah in her first year of life...sometime prior to July 2009. Nalah was on high-flow oxygen for a number of months after 'coding' at four months of age. Nalah had what is termed a 'critical' or 'difficult' airway. Despite all her medical complexity, she found energy to play games with us, and simply love and be loved. Our dear little girl.
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