A POEM FOR NALAH


A butterfly lights beside us like a sunbeam.

For a brief moment it's glory and beauty belong to our world.

But then it flies on again, and though we wish it could have stayed, we feel so lucky just to have seen it.

Tuesday, April 3, 2012

Nalah's Smile

I was taking photos of Nalah one morning, and as Nalah heard the familiar sounds of the camera on my iPhone, she looked at me and broke out in this grin. I believe she was posing for the next photo. This smile melted my heart that morning, and still does. My lovely girl. Nalah gave and received so much love. Moments like this were breathtaking, especially after being told (by medical community) that she would not engage in a meaningful way with her world. Well, this is how she engaged with us. Love you my girl. For the record, Nalah smiled her first week. It brought me hope, to know she could express happiness, when she fell into heart failure at eight days of age. It helped me have hope there was a quality of life to be saved. Nalah is about 22 months old in this photograph. This photo also has an uncanny resemblance to my childhood photos. I am grateful to have experienced this moment with her. 

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