A POEM FOR NALAH


A butterfly lights beside us like a sunbeam.

For a brief moment it's glory and beauty belong to our world.

But then it flies on again, and though we wish it could have stayed, we feel so lucky just to have seen it.

Tuesday, June 17, 2014

A trisomy friend, Abigail's Mom Amber Almeida, posted this quote today and I find it very fitting for our experience of parenting a trisomy child. I see this as a positive. All that is non-essential washes away, only what has true value remains.  Priorities are shifted as life is tumbled upside down. You are left creating a life that has meaning, true meaning. You are left facing, and learning to love, your true self. 



"Adversity is like a strong wind. It tears away from us all but the things that cannot be torn, so that we see ourselves as we truly are"   
Arthur Golden


For any trisomy parents, especially those carrying a child yet to be born, I want to say please have courage.  Enjoy every precious moment you have together.  Know that the experience will change you in positive ways, even though it feels as though you are being ripped apart in the arms of a storm. What remains will be worthwhile. Your experience with your child is a true gift.  Nothing can take away the love you share, not death, not anything.  A loving family is something worth the adversity. I pray you will have strength and hope. 

No comments:

Post a Comment