A POEM FOR NALAH


A butterfly lights beside us like a sunbeam.

For a brief moment it's glory and beauty belong to our world.

But then it flies on again, and though we wish it could have stayed, we feel so lucky just to have seen it.

Tuesday, June 19, 2012

Teething, but still a glimmer of a smile...


Nalah teethed for about 18 months of her 26 month life. The first tooth was the hardest. It took four weeks to emerge, and then disappeared again the next day. A month of work, for what! Nalah was tube fed, so the teeth always seemed an unnecessary source of discomfort, however, Nalah took it all in stride. She cut about 10 teeth in the months before turning two. Nalah teethed continually from about six months to her last days. This photo reminds me of her quiet strength. She rarely, if ever cried. Nalah was more likely to cry if something did not go her way. For instance, the one night we tried to put the girls to bed at different bedtimes....Nalah did NOT appreciate being put to bed before her big sister. If Nalah ever cried, we generally asked Karis to enter the room and then she would stop. If Nalah did not stop crying when Karis was beside her, then we would consider whether Motrin was necessary....since she hardly ever, every cried, and if she did there might be some pain. I can see that Nalah is under the weather in this photo, I can see the tiredness in her eyes. However, I also see her strength. She was a tenacious little soul. Defying the odds, defying death, for far longer than her medical team expected. My little warrior. Nalah taught us about taking life in stride, and remaining calm, despite any storm.

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